Boundless Possibilities Begin Here!

Help us reach $150,000 — all gifts matched up to $50,000

Boundless Possibilities Begin Here! image

In 2016, when someone was diagnosed with Okur-Chung Neurodevelopmental Syndrome (OCNDS), they were told there were no treatments, no research plans, and no path forward. Families were expected to accept “no action” as the plan — while their children struggled daily with communication, mobility, behavior, and independence.

We didn’t accept that.
We built something instead.

The CSNK2A1 Foundation was founded to change the future of OCNDS — and in just a few short years, we’ve built a global community across 45 countries, launched the first targeted research efforts for our gene, and identified promising drug candidates ready for testing. For the first time in the history of OCNDS, we have real opportunities on the table that could meaningfully improve the lives of our children.

But hope alone isn’t enough.
What we do right now determines what becomes possible in the next two to three years.

Why Your Support Matters

OCNDS is a rare genetic neurodevelopmental disorder caused by changes in the CSNK2A1 gene — a gene essential to brain function, learning, movement, and development. Children and adults with OCNDS need more support, more understanding, and more answers than currently exist.

Your support helps us push forward the work that can change that.

This December, we are working to raise $150,000 to accelerate:

  • Drug testing for identified treatment candidates
  • Global clinical partnerships to better diagnose and support individuals
  • Data & biobank expansion that fuels scientific discovery
  • Research infrastructure required to move treatments from the lab to families

And thanks to the extraordinary generosity of Joan and Charlie Davis, every gift this month is matched dollar-for-dollar up to $50,000, doubling your impact.

The Future We Are Building

A treatment for OCNDS would transform everyday life for families around the world who are still waiting for help. It would mean more communication, more independence, more stability, more sleep, more connection, and a safer, more predictable day.

Your gift brings that future within reach.

Your generosity helps turn Boundless Possibilities into reality.

Thank you for standing with us, believing in our children, and helping us move closer to the first OCNDS treatments. 🎥 Watch our December campaign video to see the faces and voices behind this mission.